Living With CLIPPERS

A blog about the experience of living with CLIPPERS - Chronic Lymphocytic Inflammation with Pontine Perivascular Enhancement Responsive to Steroids

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Wednesday, 13 May 2015

Blood

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A box of stuff. A bag of tubes. I realise there's been a bit of a gap between posts recently - sorry about that.  In the inter...
Sunday, 29 March 2015

Glimpses of CLIPPERS Neuropathology

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Seeing blobs on contrast-enhanced MRI and not being able to tie my shoe-laces up is one thing, but figuring out the root cause(s) and...
Friday, 20 March 2015

Mayo CLIPPERS Study Update

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It must be Spring. A very quick update/reminder about the CLIPPERS study at the Mayo Clinic . I had a very brief email conversation wit...
Saturday, 28 February 2015

Rare Disease Day

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I was reminded that today is Rare Disease Day 2015. So I will simply post the message from Rare Disease UK and suggest that everyone ...
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