I was reminded that today is Rare Disease Day 2015. So I will simply post the message from Rare Disease UK and suggest that everyone reading this blog takes some small feeling of recognition in being part of a much larger collection of affected people world-wide.
It's Rare Disease Day today! Today we are paying tribute to the millions and millions of parents, siblings, grandparents, spouses, aunts, uncles, cousins, and friends whose daily lives are impacted and who are living day-by-day, hand-in-hand with rare disease patients.
We know that many of you have a rare condition or care for someone who does. Yet you have helped RDUK to ensure that policy makers, public authorities, researchers, and health professionals understand that rare diseases are a public health priority. So would like to thank you - our dedicated members - for a all the hard work you and support you have shown. We couldn't have done it without you!
We know that many of you have a rare condition or care for someone who does. Yet you have helped RDUK to ensure that policy makers, public authorities, researchers, and health professionals understand that rare diseases are a public health priority. So would like to thank you - our dedicated members - for a all the hard work you and support you have shown. We couldn't have done it without you!
Read other articles in this series at Living With CLIPPERS.
Living With CLIPPERS by Bill Crum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.
