Sunday, 8 January 2012

Who Gets CLIPPERS?

There have been a few reported cases of CLIPPERS now and I wondered if there was any pattern. There's not enough cases or consistency of reported information to go into much detail but I thought it worth a look.

So simple things first, there's been an even split in the cases reported to date of 8 men and 9 women. Including me and the one female and one other male CLIPPERS patient I've heard about so far makes for 10 men and 10 women. On the limited information available it doesn't seem that men are any more or less likely to be diagnosed with CLIPPERS than women.

The next most obvious thing to look at is age at onset of symptoms.

Monday, 2 January 2012

No news is good news ...

No news is good news over Christmas 2011 as things have been pretty stable.

Is this my Christmas box?
To recap, Prednisolone maintained at 15mg / day and Azathioprine on an increasing dose which before Christmas had just gone up to 75mg twice a day. Associated with the latter I have been going to my GP for weekly tests of blood count and liver and kidney function

Wednesday, 21 December 2011

With a Bang or a Whimper?

 
A squawk

My CLIPPERS 2011 ended with more of a whimper - or at least a squawk -  than a bang. On Monday I was booked in at the Day Care Unit at NHNN for an MRI and a meeting with my consultant. On the previous Friday the MRI appointment was pulled forward so I had to be at the unit for 8:45AM. This meant leaving the house earlier than I normally do to get to work! On the first day of my Christmas holiday!! I shouldn't moan too much though - comprehensive monitoring is a good thing.

Wednesday, 14 December 2011

A Very Merry CLIPPERS Christmas!

 

As we move towards the Christmas holiday period there will be slightly less frequent updates here for a little while - not no update, just not quite the as-regular-as-clock-work twice-a-week schedule that hopefully one or two have got used to. For those who want to keep up to date without the hassle of checking back here, a quick reminder that you can Subscribe By Email from any page and receive the latest updates automatically.

In terms of news, I'm now maintained on 15mg/day Prednisolone and two weeks into Azathioprine which has now moved up to 50mg twice a day. I feel pretty good and everything is pretty normal as far as I can tell. I've just started a weekly schedule of blood tests to monitor the Azathioprine effects on my blood count and liver and kidney function. I thought that was it for 2011 ...