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| In the absence of an Easter Bunny this will have to do. |
Down to 10mg Prednisolone and stable at 100mg (twice-daily) Azathioprine.
This is now the lowest dose of Pred I've been on since being ill.
This is now the lowest dose of Pred I've been on since being ill.
Feeling alright so far.
Interweb
I came across the NIH Office of Rare Diseases Research the other day and the related site the Genetic and Rare Diseases Information Centre. The latter has an entry for CLIPPERS but the resources available are all generic and not CLIPPERS-specific. I submitted this blog as a suggested resource they could use. They've replied to say they will check to see if it meets their "new criteria" for personal blogs and add it to their web-page if appropriate. I guess they want to make sure I'm not selling snake-oil. I also came across RareShare which is "a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders". I've signed up and submitted CLIPPERS as a new community (as inevitably it wasn't on their database) but it hasn't appeared to date.
Insurance Quest
Some more delays with getting travel insurance quote. I rang All Clear Options again last week and they were very apologetic about the delays and said they should have an opinion about how to label CLIPPERS (for insurance) this week. That hasn't happened so I will be back on the phone after Easter!
Happy Holidays!
Read other articles in this series at Living With CLIPPERS.
Living With CLIPPERS by Bill Crum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.
