Wednesday, 29 January 2014

CLIPPERS in 2014

A random crab.
Sorry for the slightly longer than usual gap in posts over the Christmas period. As you might imagine, although CLIPPERS itself doesn't respect holidays, the world of CLIPPERS news seems to, and there has not been much to report since December.

On the approaching horizon is Rare Disease Day 2014 on 28th February. Unfortunately CLIPPERS is too rare to appear on many lists of rare diseases. (However, it does appear on this US site). So if you have a Rare Disease organisation or group in your country, why not bring CLIPPERS to their attention? If no-one knows we're out there it is harder to get help. As for Rare Disease Day, there is a web-page of events world-wide which may help you find your local group.

I look forward to bringing you more CLIPPERS news in 2014 and I hope it is positive.

Read other articles in this series at Living With CLIPPERS.

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Living With CLIPPERS by Bill Crum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.


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