(Unfortunately the biggest CLIPPERS news this week is not about the neurological condition but about the owner of the American basketball team. I can't compete with that, but can offer a couple of more modest news items. )
I met my neurologist yesterday and, to summarise, "no news is good news". I am being maintained on Azathioprine and will be scanned again in the next few weeks to be on the safe side. Vision (follow-the-finger) was judged good and balance/walking also OK. I'm not brilliant at standing on one leg with my eyes shut but would argue that was also the case before CLIPPERS arrived on the scene!
Last week, I received an update from Dr Tobin at the Mayo Clinic regarding the CLIPPERS repository. As a result of it appearing on this blog, 9 people have signed up so far (including me). Dr Tobin thinks this is an excellent response given the rarity of the condition, and this number of volunteers will allow the team to expand on their originally planned work.
Read other articles in this series at Living With CLIPPERS.
Living With CLIPPERS by Bill Crum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.
