Tuesday, 6 January 2026

A Book on CLIPPERS free Kindle-book for a limited period.



Happy New Year !
From 7th January 2026 to 11th January 2026 the Kindle edition of this book is free on Amazon.

More information and download links on this page:


Read other articles in this series at Living With CLIPPERS.

Creative Commons Licence
Living With CLIPPERS by Bill Crum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.
A Book on CLIPPERS is now available.

Friday, 24 October 2025

2025 Update


On the tourist trail in 2025.


My CLIPPERS journey is the same as ever - take tablets, see Neurologist, occasional brain scan. I am grateful for being stable for so long, whatever the reason.

I updated the References for 2024/2025.

There's an interesting article on this link about Ben, an English chap who was about to start chemo for lymphoma when CLIPPERS was diagnosed. The article claims there are "only 140 recorded cases" worldwide but I suspect 140 cases in the UK (or at least Western Europe) is more realistic? Ben has turned to fundraising and generating music about his experience, and has a YouTube and WebSite to showcase his creations.


Read other articles in this series at Living With CLIPPERS.

Creative Commons Licence
Living With CLIPPERS by Bill Crum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.
A Book on CLIPPERS is now available.

Wednesday, 9 October 2024

A Cautionary Tale

The blasting of the innocuous-looking spot.

It's thirteen years since I was diagnosed with probable CLIPPERS and like everyone else, I'm ageing, slowly and hopefully gracefully. The skin on my face is increasingly dry and irritated and as someone who is very fair-skinned I know I need to be careful with sun-exposure. Recently I noticed a small but persistent spot on my cheek and eventually decided to get it checked out. The doctor said that she could see I was taking Azathioprine and that my skin wasn't great, but she couldn't see a record of skin-reviews. I said that I was aware I had to be careful with my skin but I had never been invited for a skin-review. So that's how I found myself referred to the dermatology clinic in the local hospital under the NHS rapid referral scheme which is usually used when there is a cancer concern. The doctor said she was almost certain there was nothing serious present, but with my history I should be looked at quickly.
    The dermatologist diagnosed various keratoses, told me there was nothing to be concerned about, and then produced a liquid nitrogen gun and froze the original innocuous spot. You can see the evolution of it from almost invisible spot to a blister and then slowly healing skin in the picture. Now there is no sign of it.
    I'm taking a few seconds of your time in the hope it will remind anyone on Azathioprine or drugs with similar warnings about sunlight exposure and the need for skin reviews to take them seriously and hopefully head off any unnecessary unpleasantness.  Although I slipped through the original monitoring net, at least someone alert picked up on it when I subsequently did have a concern.

Read other articles in this series at Living With CLIPPERS.

Creative Commons Licence
Living With CLIPPERS by Bill Crum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.
A Book on CLIPPERS is now available.

Wednesday, 4 October 2023

A Book on CLIPPERS promotion


Just a quick update that the ebook edition of "A Book on CLPPERS" will be free worldwide on Amazon from tomorrow (Thursday 5th October 2023) for 5 days.

Read other articles in this series at Living With CLIPPERS.

Creative Commons Licence
Living With CLIPPERS by Bill Crum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.
A Book on CLIPPERS is now available.