Things have been quiet recently which is why there's not been an update for a little while. Anyone who spent June in the UK will know it's not just because I've been out enjoying the summer sun!
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| I definitely couldn't do this with double vision ... (Prometheus, IMAX 3D) |
I've been pleased to hear from another "CLIPPER" by email this week - that makes at least four since I started writing this blog which shows that CLIPPERS does exist in the real world outside the research papers and is being diagnosed.
I've also been Prednisolone-free for three weeks (but still on Azathioprine). I haven't noticed any change in CLIPPERS symptoms (I don't have any to speak of at the moment thankfully) but have been getting some stiffness in my legs - hips and knees mostly. This doesn't feel neurological in the sense that it isn't like the "locking-up" or balance problems I had last year. It's more like you might feel after you'd run up a steep hill and most noticeable after I've sat down for a long time - could just be middle age creep. I did briefly Google this association with Azathioprine and found some similar (non-CLIPPERS patient) reports. But on the other hand it's the way of the interweb that you can usually find a report of anything you want - if I suddenly developed a wart (or a potato!) that looked like David Cameron I'm sure somebody somewhere will have reported a similar association with Azathioprine. I also found reports of people getting joint/muscle problems when (or even after) coming off
Prednisolone although I was a on very slow taper so I don't know if it
was that either. Anyway add to the list of things to ask the doc next time I see him, but I obviously don't want to make the mistake of confusing correlation with causation.
I'd also like to thank the slowly growing readership (especially the ones who come back for more!) - hopefully some of the stuff here is still either interesting or useful.
Read other articles in this series at Living With CLIPPERS.
Living With CLIPPERS by Bill Crum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.
