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| You can't escape it! |
Just a quick post this time. I've been reading this recent paper about outcomes a bit more closely (see the last post for an overview). One of the 12 patients really stands out - a boy age just 13 years old when symptoms appeared (patient 5). This is much younger than most other cases but the really surprising thing is the duration of illness. He is listed as having had CLIPPERS symptoms for 408 = nearly 34 years; so those of us who think we have something new will have to take a step back and realise CLIPPERS has probably been around in unrecognised form a lot longer. This patient was recruited via a Multiple Sclerosis centre so perhaps had been regarded as an atypical MS patient for years. Unfortunately he also had the most relapses (12) over the follow-up period but was not treated with cortico-steroids. Interestingly he went for 280 months = 23 years without any relapses according to the graph in Figure 2. So all this suggests that CLIPPERS is survivable in the long-term but that appropriate treatment is key to keeping it at bay as far as possible ...
Read other articles in this series at Living With CLIPPERS.
Living With CLIPPERS by Bill Crum is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.
